I haven't posted in the last few days because the drugs in this first round sent me straight to bed. The side effects on Mon and Tues were worse than anything I experienced during the 6 months of side effects last time!
I was sick as a dog and not getting any better so Carol got me in to see the doctor yesterday. I had just spent the last 24 hours in bed and she was worried. The doctor agreed that something was making the side effects much worse than they should be. We suspect it might be the neuropathy from the last chemo. Neuropathy messes up your nerves and can heighten pain so he things the normal nausea and pain you feel are being magnified. Could be, all I know is I could not possibly do 6 months of THAT. We figured out what druge we think is causing the problem and he is going to leave that out for awhile and see what happens.
This means I do not have to go every Friday but every OTHER Friday since the drug he was going to give me on the off Friday is the one we eliminated.
I doubt I will be going back on that so we might have to find an alternative drug or just go with what we have.
At this point I am so beat up and sick from what I did last Friday that I can barely get out of bed. Today is better so I wanted to post what was going on.
I am comfortable with whatever we end up doing. I believe I will be ok and will get past this and on with our lives.
Carol has been a wonderful nurse and all of you should know how much this battle is being fought by US not by ME!
Love to all....
John
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Dears John and Carol..
ReplyDeleteI JUST KNEW THAT SOMETHING WAS DIFFERENT GOING ON BACK EAST!! Call it Mom's instinct... Good for Carol getting you to the Dr.'s John... This Blog you have made is a wonderful way to keep in touch with everyone!
You know many are praying for you... and for Carol,too. It is very difficult to stand by and see one you love going thru this pain and misery... Lubs ya two...Joanne and Bill