Hi all,
I'm not sure if I should win a prize or something but I have officially achieved 100% of the Erbitux side effects on the first dose. (Maybe I should call Ripley's Believe it or Not and see if they have a section on Chemotherapy)
Last night a rash started forming on my face and this morning it is really starting to spread. It looks like teen age acne all over again. I have these white heads (called postules I think) all along my chin area, on my upper lip and starting to spread outwards on my face. There are also a few of them starting on my chest. Thank goodness I work from home or I would have to go to work like Michael Jackson wearing my mask! As it is, Carol is the only person who has to see this mess. There isn't anything you can do about it except put lotion on it to keep it from hurting. You also need to stay out of sunlight because sunlight makes the rash worse. Not that I feel going anywhere but still.....
Its not an infection although the rash CAN get infected so I have to be very careful of that. Man, I hate Erbitux!! Obviously there is something about my body's makeup that just does not go well with this drug. Oh well, we are not going to use it anymore so I am hoping this rash goes away soon. What amazes me is that I only had 1 dose of this stuff 10 days ago and every single side effect is happening to me even now. Bad drug, bad reaction, just plain bad news!
On the positive front, the nausea is starting to subside which is great. I still feel run down if I do anything at all but I can live with that. I am just trying to stay positive right now because my second session is this Friday and I am hoping to be strong enough by then to get through it without too much trouble.
I want you to know that I really appreciate hearing from you all, it is an amazing thing to know that there are people out there who are pulling for you even if you can't see them every day. So thank you for your prayers, thank you for reading this blog and thank you for just being there, you are all a blessing!
Peace and Love to all
John and Carol
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John,
ReplyDeleteI'm sorry bout that rash...just look at it this way, it just reafirms that you made the right decision about that drug. And luckily, you won't be taking it again so once you get through this rash, you know it won't come back. Try not to let it get you down ok? Just enjoy those ice cream sandwiches!!!
Love you,
Murph
Hey John, want you to know that we're following along on the blog, and if we miss an update GmaJo makes sure we're up to speed. Keep up the fight man, we love you and are praying for you and KayRole, too. Watch out for dingos (and dodos)! SB Leichts.
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