Weekly update

Hi folks

Sorry for not updating recently but there really hasn’t been too much to tell. Week 9 is going pretty much exactly like Weeks 7 and 8. I was extremely sick and nauseous from Friday until today even with all the anti nausea medicine. I am sleeping over 12 hours a night and still feel completely exhausted. I can definitely tell that the cumulative dosages are staying longer and building up in my body. I would have to say that fatigue, disorientation and general “chemo fog” are actually the worst side effects right now. Besides the nausea, I have fissures on my finger tips and cuts in my mouth but all of that is manageable with ointments and special mouthwash. There is nothing you can do about the fatigue and the rest of it though and that is what kills you down the stretch.

 

With 3 sessions to go over the next 6 weeks it is going to be a limp to the finish line. One thing I am prepared for that caught me totally by surprise last time is recovery time. Last time I figured it would take 2 weeks for me to get back to full strength after the last dosage. In reality, I was not able to get back to full strength for over 2 months! So I am not expecting anything less this time which means missing some work and just relaxing until I am back to “normal”. It will be interesting to see if it is longer this time or not but I would be very surprised if I was anywhere near normal before around May. We’ll see how it goes but that is what I am gearing up for right now.

 

There really isn’t much else to tell you these days, our lives are completely on hold during this time. Carol has to pick up the slack for everything around the house so she is constantly on the go doing house stuff. I don't ever feel like doing anything out of the house so we really haven’t done much for fun either.  It can be a strain living like this day in and day out. Its hard on both of us but somehow we just put our minds to it and just do it, whatever it takes.

 

Our plan right now is to see how long it takes me to recover from the  last session and then head to a beach somewhere and just relax for a week but we can't even plan that until we see how these last few sessions go.

Anyway, we can see the light at the end of the tunnel and we are heading to the end of this so please keep us in your thoughts and prayers and we will get through this

Peace and Love,

John and Carol